{"id":4030,"date":"2023-03-07T21:56:10","date_gmt":"2023-03-07T21:56:10","guid":{"rendered":"https:\/\/www.cronicas-upch.pe\/en\/?p=4030"},"modified":"2025-04-22T00:07:04","modified_gmt":"2025-04-22T00:07:04","slug":"using-a-co-creation-approach-to-develop-a-core-outcome-set-for-type-1-diabetes","status":"publish","type":"post","link":"https:\/\/www.cronicas-upch.pe\/en\/using-a-co-creation-approach-to-develop-a-core-outcome-set-for-type-1-diabetes\/","title":{"rendered":"Using a co-creation approach to develop a core outcome set for type 1 diabetes"},"content":{"rendered":"

[vc_row row_type=\u00bbrow\u00bb use_row_as_full_screen_section=\u00bbno\u00bb type=\u00bbfull_width\u00bb angled_section=\u00bbno\u00bb text_align=\u00bbleft\u00bb background_image_as_pattern=\u00bbwithout_pattern\u00bb css=\u00bb.vc_custom_1613264825552{padding-bottom: 30px !important;}\u00bb z_index=\u00bb\u00bb][vc_column][vc_row_inner][vc_column_inner width=\u00bb2\/3″][vc_column_text]<\/p>\n

Using a co-creation approach to develop a core outcome set for type 1 diabetes<\/strong><\/h2>\n

[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00bb1\/3″][\/vc_column_inner][\/vc_row_inner][vc_row_inner row_type=\u00bbrow\u00bb type=\u00bbfull_width\u00bb text_align=\u00bbleft\u00bb css_animation=\u00bb\u00bb css=\u00bb.vc_custom_1613264992601{padding-top: 40px !important;}\u00bb][vc_column_inner width=\u00bb2\/3″][vc_single_image image=\u00bb4292″ img_size=\u00bbfull\u00bb alignment=\u00bbcenter\u00bb][vc_column_text]Evidence is needed to make decisions that address people\u2019s needs to improve their health. However, most studies do not systematically measure outcomes that are relevant for patients which means that decision-makers are lacking this perspective when selecting an intervention for funding or integration within a health system. Thus, it has been proposed that having \u201ccore outcome sets\u201d (COS), a standardized set of outcomes to be used in all studies for a specific health condition, based on patients\u2019 needs could be a solution. However, most COS have been developed by clinicians without considering patients\u2019 values and preferences.[\/vc_column_text][vc_column_text]<\/p>\n

Aim:<\/h3>\n

Develop a method using co-creation approaches to create a core outcome set (COS) by including patients\u2019 and caregivers\u2019 perspectives considering type 1 diabetes mellitus (T1DM) as a model.<\/p>\n

 <\/p>\n

Study design:<\/h3>\n

Prioritization workshop using co-creation approaches in 2023. We will conduct a workshop involving different stakeholders (patients living with type 1 diabetes and caregivers, patient associations, healthcare practitioners, local authorities, and researchers). Activities of the workshop, including group discussion and discussion in the plenary sessions, and voting will be audio-recorded and transcribed verbatim, and thematic analysis will be conducted using Nvivo. We will contrast results between and within the 4 groups.<\/p>\n

 <\/p>\n

Result:<\/h3>\n

The workshop found that, although priorities varied among the groups of participants, all stressed the importance of improving the health system as an initial step that could lead to a reduction in mortality due to diabetes.<\/p>\n

Participants recognized the interdependence between the proper functioning of the health system, clinical outcomes, self-management and quality of life.<\/p>\n

Outcomes related to economic impact on the individual and structural support (e.g., health promotion policies and protection of those living with diabetes) were considered more important than measuring clinical outcomes.<\/p>\n

 <\/p>\n

Different groups of participants prioritized outcomes in different ways. Therefore, the inclusion of these stakeholders (people living with diabetes, caregivers, health personnel and health decision-makers) is necessary to achieve better health policies.<\/p>\n

By incorporating diverse perspectives, healthcare systems can better address patients’ needs and improve the overall quality of care.<\/p>\n

 <\/p>\n

Contact:<\/h3>\n

Jessica Hanae Zafra-Tanaka, MD, MSc<\/p>\n

jessica.zafra@upch.pe<\/a>[\/vc_column_text][\/vc_column_inner][vc_column_inner width=\u00bb1\/3″ css=\u00bb.vc_custom_1613264266426{padding-right: 20px !important;padding-left: 50px !important;}\u00bb][vc_column_text]<\/i> Place of study<\/span><\/strong><\/p>\n

Lima, Peru[\/vc_column_text][vc_separator type=\u00bbsmall\u00bb position=\u00bbleft\u00bb][vc_column_text]<\/i> Funding<\/span><\/strong><\/p>\n

Swiss Government Excellence Scholarships.<\/p>\n

As part of the activities from the ACCISS study, this study also receives funding from The Leona M. and Harry B. Helmsley Charitable Trust.[\/vc_column_text][vc_separator type=\u00bbsmall\u00bb position=\u00bbleft\u00bb][vc_column_text]<\/i> Duration of the study<\/span><\/strong>
\n2022-2024[\/vc_column_text][vc_separator type=\u00bbsmall\u00bb position=\u00bbleft\u00bb][vc_column_text]<\/i> Reserachers<\/span><\/strong><\/p>\n

Jessica Hanae Zafra-Tanaka<\/p>\n

J Jaime Miranda[\/vc_column_text][vc_separator type=\u00bbsmall\u00bb position=\u00bbleft\u00bb][vc_column_text]<\/i> Collaborators<\/span><\/strong><\/p>\n

David Beran, University of Geneva and Geneva University Hospitals.<\/p>\n

\u00a0<\/strong>[\/vc_column_text][vc_separator type=\u00bbsmall\u00bb position=\u00bbleft\u00bb][vc_column_text]<\/i> Publications<\/span><\/strong><\/p>\n