Towards meaningful stakeholder engagement in policy decisions: The case of diabetes mellitus in Peru

Meaningful engagement is a process in which the individual is “empowered and acts as an agent of change and is respected, valued and included in a range of activities and processes, from start to finish”. Even when its importance has been recognized, there are still some barriers preventing the implementation of meaningful engagement of civil society in decision-making processes. In this context, implementation science methods can provide robust tools to explore context-specific efforts and identify barriers and facilitators affecting meaningful engagement in diabetes-related policies, which in turn can provide concrete specific recommendations for future implementation strategies.
Aim:
Describe barriers and facilitators for meaningful engagement in policy decision-making processes regarding Diabetes Mellitus (DM) according to different stakeholders, including patients and patient representatives, in Peru.
Study design:
Qualitative study in Peru during the years 2022-2023 to explore experiences regarding the participation of different stakeholders in policy decision-making processes. The study consists of in-depth interviews to people with T1DM and their caregivers who are active members of patients’ organizations, patient representatives, health care personnel, institutions involved on civil society participation, researchers and government officials currently working on the NCDs strategy of the Ministry of Health and Social Security. We Will identify barrier and facilitators using two implementation science frameworks: capability, opportunity, motivation, and behavior (COM-B) model and the Theoretical Domains Framework (TDF).
Result:
- Policy Brief: Towards meaningful engagement of people with lived experience in policy decisions: the case of diabetes mellitus in Peru. https://acortar.link/FnPGGn
Contact:
Jessica Hanae Zafra-Tanaka, MD, MSc
Place of study
Lima, Peru
Funding
The Global Noncommunicable Disease Platform of the World Health Organization (WHO) and the Defeat-NCD Partnership hosted by the United Nations Institute for Training and Research (UNITAR).
As part of the activities from the ACCISS study, this study also receives funding from The Leona M. and Harry B. Helmsley Charitable Trust.
Duration of the study
2022-2024
Reserachers
Jessica Hanae Zafra-Tanaka
J Jaime Miranda
Jill Portocarrero-Mazanett
Collaborators
David Beran, University of Geneva.
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